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Thought i would start a new thread for this as i am struggling.
Mrs G doesn't know i am doing this but i can't talk to anyone, and you have all been great so thought i would offload again.
She had pneumonia at the end of November which lasted through to the middle of Jan. I had to call a doctor out as there was no way she could make it to the Doctor's surgery. New meds prescribed. A few days later at about 1:30am, i walked in to check on her to find her having an extremely violent seizure. She has never had one before. Her whole body was cramping up, shaking and jerking at the same time and she was foaming at the mouth.
Called an ambulance straight away. By the time the ambulance arrived the seizure had passed but Mrs G was delirious and very confused. Paramedics took her to A+E. Another seizure on the way to hospital and another shortly after being admitted. She has not had another one since.
While she was in the hospital (6 days in total) she had 2 MRIs and a lumbar puncture. Oxygen levels varied from 84% to 88% the whole time.
Now for the even more worrying part. They found several legions on her brain. No one knows exactly what they are or how long they have been there, but they weren't there in her previous MRI about 18 months ago. Had to go back to see the MRI specialist yesterday, prescribed more tablets and has to have another MRI in 3 months to see any changes.
No one seems to have any answers and cannot seem to find what is wrong.
In all this i had to take my son to see the doctor. He asked at the end how me and Mrs G were doing, told him everything and he has now put me on what he described as significant antidepressants, to help me cope. Even though i am coping he said, these should help me focus and give me a bit of a lift.
So, things have really taken a turn for the worse. Mrs G is now pretty much unable to support herself anymore.
If you have read this, thankyou. Not looking for answers just needed to vent. So, back to my original question, will we ever catch a break?
wow mate, that's a lot to have to go through - for both/all of you
fingers crossed for some better news for you
I hope it helps to know others are thinking of you, so sending virtual hugs.
👀
Thats a helluva lot to contend with.
I only have one piece of advice...
Hug your Wife, love your Wife.
You are both going through tremendous difficulties, but your Wife is on the receiving end of both condition and your love.
I can’t type a proper reply at the moment as had a few beers
i thought about you earlier as hadn’t seen you one here for a while, was going to search out and post on one of the old threads asking about you
all the can say is that thinking of you and we’re here for whatever support we can provide
Wish there was something meaningful I could say, I really do. Big virtual hugs to you and yours from the family Funk. Do you have any kind of support network, family or friends? Take all the help you can and if you ever need to vent my emails in my profile.
take care
I too don't know what to say.
What an unbelievably ridiculously bad time you've had.
Somehow hold yourself together. Get what ever help you can and please, please ride your bike, even if it's for an hour.
Sending virtual hug to you, your wife and your children. Remember children can be tremendously resilient.
Hold on in there.
Bunnyhop xx
I thought this was going to be about surfing.....
Dude, not much to say, other than I wish you the best.
My mum was rushed to Bart's in April last year with acute leukemia. Fortunately, she got through it, but it's now suffering with"depression". A mix of not being able to go out and do what she would normally be doing. Her eyes are screwed due to the chemo. She's now offering whether she should get some happy pills from her doctor.
Not sure if this is the best approach. Tried to encourage her to put on a thick jacket and get a bit of sun on her face, even if that is only for 20 mind outside with the dog and her grandson.
Sorry for the rambling, but I(think) I understand your predicament. Good luck.
I can't say much apart from 'kind of know what your'e going through'
(Bowel cancer sucks especially when your wife has 2 bad infections & has 3 major ops in 10 days, she's still not right 8 months later)
Feel for you Gnusmas. Sorry I can't say much more.
Sorry to hear this my friend 🙁
I have the same thoughts as you with my wife's downward spiral in her MS its just a relentless drain on your spirit, though I don't have to deal with a child as well so you deserve a massive hug for that added layer of worry & commitment.
Many people will say "look after yourself" oh I so wish they try it when you are worried sick about those you love, it takes over your life and the very thought of having a treat for yourself seems so selfish?
I wish you all the best in keeping going
I dont know what its like what you are going through but ive been through plenty of tough times myself and it can be hard to see the light at the end of tunnel but eventually things usually sort them selves out even if you cant see that right now.
Best of luck to all of you
I dont have much to offer other than from my own experiance running is the best anti depressant and a good way to put these things in perspective.
Otherwise just good luck to you both
Really sorry buddy. Wife of a friend was found to have 17 lesions in her brain. They removed 4 and check the others once a year. She's pretty much fine. Treated at John Radcliffe Hospital near Oxford. They were awesome, apparently.
Hoping things improve very soon.
Sorry to hear things are so rough. Haven’t got any words of advice but hope that you get some positive news soon.
Bugger, hope you catch that break sometime soon.
Like others have said, grab a few minutes or hours to yourself when you can, accept every offer of help that allows you a bit of "you" time. It's not selfish, you just can't keep pouring from an empty jug, and time doing the things you like tops that jug back up. Antidepressants didn't give me any help, maybe I didn't give them a proper chance, but a few odd little coping strategies like choosing to only worry about stuff for half an hour at a time, followed by either a burst of music or comedy audio, and the rest of the time just get on with it, have helped push the anxiety back a bit. Good luck.
MrG I don't know what to say other than hug your wife, kids and any friends nearby.
Crikey, sorry to hear that you’re still being dealt a tough one. You really are much stronger than I could ever imagine being myself.
Terribly sorry to hear what you and your wife have been through.
Life can sometimes be unceasingly relentless, almost crushing.
What I will say is that your wife is very lucky to have such a caring hubby through all this.
If posingp on here helps in the slightest you crack on my friend.
I hope you get answers about the lesions very soon and that the news is much better than you fear.
Take care buddy, Spring is on the way and with the returning sun and warmth I hope it brings you all some peace instead of worry.
Jesus H OP, you have some luck don't you.....
I was thinking about you last week and wondered how things were as I hadn't seen a thread with any updates so I thought things had turned a corner for you.
So sorry to hear that things have got worse and hope that your wife recovers soon, take care mate and always come back on here if you need to chat.
Life is astronomicaly shite at times it can deal some rough deals. Look after yourself and just be there for your wife and son. You’ll get the answers in time and do hope you get some good news.
Sorry to hear about your continued troubles.
Speaking from personal experience, seeing your partner have a seizure for the first time can be very disturbing but once you learn what to do, particularly when you need to call for assistance and when you need to just let things run their course they can be managed and become less and less scary. I remover clearly the first time it happened I was quite controlled until the paramedics turned up and took over at which point I just sat on the floor and started to sob, this made matters worse as mrs mw had begun to return to normal and was now worried about me.
Was mrs gnusmas aware of what was going on during the seizure? If she was does she have any advice for you on how she’d like you to handle things if another one occurs? It’s a useful conversation to have.
in general my partner said it was better for her if my only intervention was to make sure she didn’t injure herself either by falling or by hitting anything during the spasms other than that she said it was more comfortable for her to just let things run their course. She was aware of her surrounding but unable to communicate during her seizures so my role was also to be there and offer some reassurance.
Its not unusual for the person experiencing the seizure to be confused, a bit dazed and pretty knackered following a seizure, it takes a lot of energy.
That's harsh Mr Gnusmas. Wishing you the strength to keep on keeping on until that break/turn of fortune arrives.