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Hi all been on here for years but not posted for a while!
I have had Bowel cancer surgery and soon will be having preventative chemo for 3 months
I will have a PICC line inserted for the duration
Has anyone else on here had one and carried on riding? if so how was it and any tips?
I have got myself an Ebike to help me keep riding (good excuse in my opinion:) )
thanks for any advice
Wife has been having Chemo via a PICC for last few months.
Lots of different types of Chemo but she is very tired and struggling to walk up hills at any pace. I can't imagine her being on a bike. Hers is in 3 week cycles so she does have one better week per cycle where we have been on some flat walks together. Your experience may be very different.
Your PICC would be taped to up and covered with a bit of tube grip. Obviously don't rip it out! For showering she got a cheap water proof cover from amazon which has worked well.
As infection is a general risk I imagine you should dial it back on the big downhills 🙂
Good luck with the treatment!
Thanks db
I am on 3 week cycles also
My chemo is preventative so am hoping won't be too bad but I will take it as it comes
Stacking it large will be off the menu I should hope!
I will be getting some covers as well both waterproof and Spandex type
Cheers
I'm going through a similar process and I've found it really tough going.
3 week cycle and in my 2nd session, I cant even think about riding a bike and most days it's a struggle to get out of bed.
Tonight I'm going to try a walk to the pub and meet up with the guys but I will be arranging a lift home - its 1.25 miles. I've done a couple of trial runs over the last few days.
You may well be different but for me getting another calories on board is a huge issue, I'm down from 92 to 72 kg and feeling pretty flaky.
Good luck.
Thoughts are with you XCGB hope you're recovering well from surgery and the treatment doesn't set you back too much and you can still ride hard.
My daughter who's going to be 4 tomorrow has had a picc line (removed), an implanted chamber (removed), a broviac (removed) and two broviacs (currently in place) so I've seen quite a bit of central veinous catheters. They don't seem to be all that sensitive, but it's best to avoid pulling on them! Daughter has fallen into a swimming pool and got hers properly soaked in the shower and it didn't cause any issues. We were pretty worried at the time though!
Probably best not to try any bog-snorkelling for the moment.
No advice but want to wish you all the best, stay positive, even if its tougher than you expected
Thanks all of you
I am not looking forward to it obviously but it's supposed to be curative so I am looking at the long term.
I hope I can get out with my dogs or a ride but we will have to see what happens.
I will try to remember to post an update on here in a few weeks when it's underway
Patagonian
Regards weight, yes I lost some during recovery from surgery, I am larding myself up in preparation!
First up - hope the surgery wasn't too bad and you're recovering well.
No advice on PICCs, but don't underestimate how sideways even "just" preventative chemo can be. I had a minor cancer 7 years ago which was surgically removed. After the worst of the post-op hernia risk had passed, I'd just started getting out riding a bit when I received a single round of preventative chemo. Had that on the Monday and felt generally fine - even riding the following weekend (i.e. 5d and 6d after chemo) - up until the Friday the following week (i.e. 11d after chemo). I just about managed to get out of bed to use the toilet and get food and drink that weekend, but that was about as functional as I got. Never felt so utterly wiped out before or since. It was well into the following week before I was feeling halfway decent again.
hopkinsgm
thanks for the frank and honest reply
Surgery was good really, was done robotically via keyhole so recovery wasn't too bad
I am aware that the cancer nurses can paint a slightly rosy picture sometimes so as not to terrify you!, we are lucky in that we have a fabulous cancer wing in our local hospital, but I am trying to be realistic, however some peoples experiences have been good so its all a bit unknown what will be my experience
Its been a real rollercoaster of a ride as anyone who has done it will know
Staying positive and looking forward to riding my local trails is my mental weapon of choice!
I've been through bowel cancer surgery myself 12 months ago and also had chemo in the 3 months following. I've lost the use of my bum, which is lovely but manageable. DM if you need to talk things through mate.
I’ve been through bowel cancer surgery myself 12 months ago and also had chemo in the 3 months following. I’ve lost the use of my bum, which is lovely but manageable. DM if you need to talk things through mate.
Jekkyl
Thanks mate, I have been "rejoined" so am pretty much back to a new normal
I really appreciate the offer, and will if I need to.
One thing I have found is how great and willing to help people are (particularly ones who have had cancer of course) which has brought me to tears on a few occasions!
Regards weight, yes I lost some during recovery from surgery, I am larding myself up in preparation!
Yes eat as much rubbish as you can 🙂
I keep things like Yazoo to hand as it's a quick 400 calories mid morning. The hospital have also provided small energy drinks which are about the same (but taste disgusting). The fruit juice alternative is ok mixed with water - ask for Altrajuce.
Patagonian
Thanks good ideas👍