[Closed] Bent finger - Dupytrens - Anyone had surgery

I can't offer advice, but I have mild dupytrens in both hands (worse on left) and there may come a time when I have to have surgery.

FWIW, mine is a pain if I am doing weight training and can get sore on longer rides.

Funny this thread should pop up today, waiting a call from the docs to see if they reckon I have this. hard lump, feels like a bruise, in line with the cords on the ring finger but no restriction of movement.

A friend did in both hands over a year period as the operation was going to be taken off the NHS list in our area (Oxfordshire).
I'm not certain which op he had but will check.
Hes done the Tour Divide route since (2 years after the last op) so it does work but I'll get better info from him for you.

I'm watching this thread with interest as I have the early signs of this in both palms, knotted fibrousy tissue that extends up towards the base of the fingers. My elderly mother has it and has never done anything about it, and now is quite limited in the use of one hand.
A friend who's a builder had both hands done in the same op a few years back and was back to normal within a few short weeks.
Apparently it can affect other parts of the anatomy too! 😲

I have it in both hands, worse in my left hand. Main issue at the moment is if I clasp something with my fingers close to my palm my third finger locks in place. I have to physically bend it back with my other hand which is quite painful. This is left hand only and only happens every now and then. Stretching my fingers regularly helps, but I know eventually it will probably need surgery. I'm 56, my 86 year dad has it and has recently had surgery. With some success.

I know someone who had it on both hands a couple of years back. Bandaged up for a while but he said he was glad he had it done overall.
Although it is often hereditary in most cases, I'm fairly sure his problems were the result of alcohol and smoking for a long time. He's now got terminal cancer so I'm told.

Also watching with interest as have them in both hands...
Not too bad as yet fortunately but had to move to foam push on grips recently

Thanks to everyone who's replied. Sounds like quite a few folk have it and my advice would be to escalate for treatment via your GP sooner rather than later i.e. as soon as you can't have your hand flat on a table.

eddiebaby - interested to hear what op your friend had.

creakingdoor - I would think he probably had the least intrusive one (fasciotomy) by the sound of it. Mine was only partially successful. Can also affect feet and a related issue with the penis :0 All clear here thankfully.

Thanks again
Keith

My mate has had it operated on. Wasn't off the bike long and has recovered fine. He wouldn't have bothered unless if affected his grip on the bike, and it was affecting him.

All OK now.

I had collagenase injections at Saint John's, Livingston last year and it has been very successful. If this treatment option is available I'd recommend it as it is much less invasive than surgery and surgery will remin an option if it doesn't work. I was only off the (road) bike for a week I think,

My surgeon told me that collagenase was getting difficult to find as the manufacturer could get more money selling it to sometic surgery patients which is appalling if true.

My mother had the full fasciotomy - I seem to remember it being quite painful and taking a while to heal properly.

Tartan, PM'd you...
Regards, Mike.

I have it.
I've had surgery on my right hand pinkie - no issues, couple of weeks no driving, but fine. Still a little bent (the finger....) but not enough to worry. No skin grafts though

Since then I've been concerned about other fingers and so have had RT on both hands (full hands) to stop it. That seems to have worked. So far. Both procedures were private.

Also took part in a trial at Oxford where they inject with anti TNF stuff. It hurts....and I think I was on the placebo side. Unfortunately

PM if you want. I can go into loads more detail

Donald - that’s interesting thanks. The consultant I spoke to yesterday is the head hand person (liking that) at St John’s so
guess not an option for me.

petec - I’ll message you.

Only downside I’ve heard about having the skin graft treatment is having a hairy inner finger as they use hair from your arm. Could be worse!

TS.

I had a big lump of gristle removed from my right hand/ring finger about six years ago which required a month off work and physio but the finger was very (>100 deg) bent. No skin graft though. Excellent surgeon mind. Last year I had a Xiapex injection in my RH Little finger which had come out in sympathy after the earlier op- It's a massive shame that the manufacturers have withdrawn their license for Xiapex to be used as a Dupuytrens' treatment in the UK because it was hassle free and quick. One visit for an injection and another visit to snap the tendon.

I've got a bar slowly developing on my right thumb but I can ignore that for a year or two I think. Never heard of that anti TNF stuff. I'll look into it.

Was it Luca Lancerotto? He seemed very good. Pity you're not a candidate for it.

Chaudhary at Wythenshawe.

Ah.Just read up the thread.

Donald no, Dominique Donaldson.

I have it too. There’s lots of us with it on here aren’t there. Had needle job about a year ago or longer. It’s coming back so will probably need to go for the full surgery. Surgeon did mention a skin graft to act like a firebreak. Went through work medical insurance.

My physio calls it “Viking finger” as apparently it is more common in people with some sort of Norse ancestry. I thought I was more a mix of Irish and French, but who can tell that far back?

Trying to remember back to when I had mine officially diagnosed and they did say that the collagenase injection would maybe be an option, but the NHS don’t like to do anything until there is a significant impact, like 20-30 degrees of finger non-movement or something. I’ve just got three gristle lumps and some shortening in left and right little fingers, so am a long way from that.