[Closed] Anyone here dated somone with ME (chronic fatigue syndrome)?

Yuppie flu...

Get used to making the tea...

A friend of my wife suffers with it. She has the days were she can't do anything but other than that she is a normal person if that's what you're worrying about.

nah, but I had suspect Post Viral Fatigue/Chronic Fatigue Syndrome for almost 6 months back in 2008/9.

What to expect? She will probably sleep a lot more than most people, and have less energy! Other than that, can't tell you a lot else... It can affect different people in different ways. Some people live almost completely normal lifestyles, some peoples lives are ruined by constant sleep and/or no energy ever! It doesn't affect all people the same way.

Oh, and many people recover from it...

Just be patient with her to be honest, and let her dictate the pace. Don't treat her like she's an invalid either, she's probably quite normal a lot of the time, just gets a bit tired a bit easily.

Doesn't sound like you will get your hole much. Well not while she's awake.

sound ideal "while you're lying down we may as well make the most of it and stop that crying!"

Oh Christ.

PM me.

You guys are hilarious, really. 😐

Cynic - al I nearly spit my wine out!

Well, her ME isn't a problem for me and doesn't change the way I feel. I liked her before I knew anything about it.

Anyway, it's a condition that I know very little about so I just figured I'd ask for some real life experiences.

Good for you sir! 🙂

druidh - Member

PM me.

Emailed you

My missus had ME for about 5 yrs. Incredibly debilitating and indeed life changing (for good or bad depending on how one deals with it).

She finally "got rid" of it after going on a Lightning Process course - recommended by two ME suffering friends. Check out: [url= http://www.lightningprocess.com/Landing/ ]Linky[/url]

Transformed her literally overnight (as it did with the other two women). And that was 2 years ago now. Since then she's back to working full time, being a mum and generally putting a whole lot more into life.

PM if you want any more details ...

PS Loddrik and anyone else who tries to be witty: I too used to wonder about the sincerity of ME sufferers and there may well be a few who "aren't unwell" - but seeing it first hand ain't pretty. ME can destroy lives. Grow up.

OP - you have PM

Is this the disease where there are no clinical examinations to confirm a diagnosis?

druidh - Member

OP - you have PM

Thanks very much, just replied.

Spacemonkey, if it is total sincerity you're after, better to ask on an ME forum than an Mtb forum perhaps...

Regardless of the medical validity of the condition, it will always be met with a degree of cynicism and derision I'm afraid. Better to make light of it...

loddrik - Member

Spacemonkey, if it is total sincerity you're after, better to ask on an ME forum than an Mtb forum perhaps...

I was going to, but they didn't want to know when I asked them whether I should buy an Orange 5!

In all seriousness, you often get a more honest viewpoint outside of a specialist/special interest forum.

Regardless of the medical validity of the condition, it will always be met with a degree of cynicism and derision I'm afraid. Better to make light of it...

The level of responses from some people over the last few days on topics such as redundancy, time off work because of stress, and now ME... Well it just stinks to be quite honest! Since when has "I'm alright thanks, **** you" been acceptable really?

I hope that in all cases ignorance does equal bliss, and those taking the piss out of those less fortunate really do never come to any ill themselves...

Regardless of the medical validity of the condition, it will always be met with a degree of cynicism and derision I'm afraid.

Agreed (unfortunately).

Better to make light of it...

Easy (but ignorant and disrespectful) if you're distanced or uninvolved.

Shameful if you're not.

Mboy, so what are your illnesses and afflictions so we can take the piss?

Mboy, so what are your illnesses and afflictions so we can take the piss?

Illnesses... Hmmm... Well got to be mountain biking I'm afraid!

Afflictions... Well, spending too much time on this bloody forum of late it would seem!

😉

Aww c'mon, there must be something better than that...

Since when has "I'm alright thanks, **** you" been acceptable really?

Thatcher. 😉

spacemonkey - as a current (what's the word?) [i]sufferer?[/i] of ME/CFS - that stuff about the Lightening Process is very interesting. I'm naturally skeptical and it all seems a bit cult like but I have heard good things. It seems to cost a lot of money.....

BTW I think my gf has found it pretty hard coping with me being ill - but that's a bit different cos we already lived together etc

EDIT: Nowt to see here. As you were.

What do you want to hear me say loddrik?

Nothing too intellectually challenging; we don't want him hurting himself...

Silence would be good 😉

Right, bollox to this, I'm off to listen to Dr Karls podcast.

spacemonkey - as a current (what's the word?) sufferer? of ME/CFS - that stuff about the Lightening Process is very interesting. I'm naturally skeptical and it all seems a bit cult like but I have heard good things. It seems to cost a lot of money.....

You have a right to be skeptical - that's to be expected. I was too, as was Mrs Spacemonkey. However, one of our (properly genuine) friends had had ME for 2-3 years and she went on it in early 08 on the recommendation of another friend who had suffered for a long time.

The transformation for all three is remarkable - and literally overnight. And I say that with absolute sincerity, e.g. working full time, running/gym, parenting, social life, energy, enthusiasm etc.

Seems to be a mix of self-coaching/hypnosis/NLP blended with other stuff.

I recommend calling a couple of practitioners local to you and just seeing what they have to say and how they come across. You might be pleasantly surprised ...

PM if you want more

EDIT: Nowt to see here. As you were.

I much preferred your original post 🙂

What is it with people editing entire posts these days?

Sometimes, speshly when dealing with the Hard of Thinking, it's best to keep schtum.

Nuff said. 😀

A pal of mine has had it on and off for 10 years now, Rugby player, in the Police, constant chatterer and definitely not work shy or anything like that. At first he Just dissappeared off the radar one day, virtually never left his house for months or a year. He now seems to go thru good patches and bad. The trigger seems to be if he's doing too much or maybe under stress. With him it's almost like mental exhaustion, but it's not been diagnosed as that, so i guess the symtoms are very different. The latest trigger appeared to coincide with a relationship breakdown, but in the past we (his friends) saw a seasonal trend (going downhill around March, uphill mid summer). TBH, the seasonal trend is still there this time around, but we're putting it down to something else on this occasion. Part of the problem is he's a real go go type, so as soon as he gets better he tries to do it all again 110% and then relapses (which is probably more the trend we are seeing than anything seasonal).

So is it considered a physical condition or a mental illness?

B.A.Nana, one thing that many "sufferers" suffer from is "boom bust". i.e. they feel they can suddenly do stuff > go overboard > and then pay for it big time. Not saying that accounts for your friend, but it does happen.

So is it considered a physical condition or a mental illness?

Not really for me to say - best left to those "suffering" with it. IMO possibly more of a psychological imbalance that creates both physical and mental debilitation.

Diane...I'll take that as a compliment and keep trying...

Go On Fred, don't be lame, let us hard of thinking benefit from the wisdom of your unedited posts...the world needs you!

A friend of mine is recovering from it, so it seems. It's taken her 20 years tho, or thereabouts. Brilliant, devastatingly intelligent but unable to actually DO much of anything besides lounge around and watch TV or read a bit for most of her youth - least of all have an education or a career.

She's trying to catch up now tho which is good.

Anyway just cos no-one knows what it is doesn't mean it doesn't exist.

My wife had it when she was 16/17 - went from being hugely active person doing sport everyday to being unable to get out of bed and having to be carried downstairs.

She eventually 'recovered' and was back to her active life at uni though she does noticeably sleep a lot and gets very tired sometimes.

She found a lightbox helped a lot during winter particularly.

So is it considered a physical condition or a mental illness?

Neurological IME. Brain forgets that body is better from whatever virus you were ill with in the first place and keeps you in 'survival' mode. Or at least that's what the ME sufferer's groups were saying a few years ago when my brother had it (5 years of being really vacant, vague and of course tired. He's about to get a first in engineering degree though so safe to say he's better now...)

A bloke-friendly analogy would be that it's a bit like that chap on here the other day with the Alfa 147 that went into 'limp' mode every time it went past 60 despite there being nothing wrong with the engine.

Though the Lighning Process and its great success really does challenge the purely neurological understanding. The other complicating thing is that there is a host of knock-on psychological problems that arise, particularly if you get it in your teens when you are supposed to be drinking cider and chasing girls/boys around.

And its not just 'yuppie flu': in my professional life i have met many 'council house tenant' sufferers of ME who would instead be branded as 'benefit scroungers'. Same illness, different insults. 😆

I know a couple of people with it (knew, one died young).

To be honest I really wouldn't get involved. It's life destroying.

To be honest I really wouldn't get involved. It's life destroying.

Eh?! As several examples above have shown, it's not usually anything like that long term.

I suffer from ME every Monday morning when my alarm goes off.

A sausage butty usually cures me though.

A friend of mine who is a gym instructor had it a few years ago. It took a while but she completely recovered.

But she is the type who can never do anything in moderation, she will excercise to the point of exhaustion and she is a vegan as well. I think most people were waiting for the "come uppance". Since then she's taken it a tiny bit easier, but she can still get his by ailments which seem to take weeks to recover from.

ME seems to be a mixture of things, and there's arguements about whether it's in your head or whether infection is the cause. Maybe it's either, or both. There's some interesting new science on ME being in some way connected with a virus named XMRV. Of course, in the past, all the research money in the UK was given to the headology docs.

I'm biased. I had a diagnosis of ME which got lots better with antibiotic treatment for something else altogether.

Eh?! As several examples above have shown, it's not usually anything like that long term.

Just found this so thought I'd post.

I've been suffering from this for about 6 months at least. Bloody horrible condition. All I want to do is ride my bike. Everytime I try to I end up unable to do even the most basic stuff around the house for 4-5 days and with 2 kids it ain't easy.

I'm fighting it everyday and pushing to recover but it's damn hard as no one knows too much a out it and the NHS are proper chocolate teapots on the subject. The best information that not only explains what is going on and makes sense of the symptoms is www.drmyhill.co.uk . Since following the advice life is more manageable and I'm hoping to be able to ride my bike damn soon!

I wish the OP and his missus all the best - many people recover, it's just a shame the NHS are no help and actually cause more suffering with CBT and GET - muppets!

For those who make fun of it, while I'd like to say I'd wish it on you I won't as it is one of the darkest most depressing places I have experienced and would t wish it on anyone.