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Just given blood and was asked if I’d consider joining the bone marrow register. Before I say yes, has anyone done it? Is it as unpleasant as I suspect it will be?
Yes. It was one of the best things I have done in my life and a honour.
It'snot pleasant, but it is not that bad either. I donated on a Wednesday was back on the bike gently on Sunday and work on Monday.
P.s. most people do not donate marrow but stem cells via dialysis type method where you sit in a chair for 4 hours. I have done this too. Feel a bit weak forb24 hours but fine after.
Thanks TheBrick.
Anyone else?
Can't do it sadly, too old 🙁
But I would if I could, wouldn't think twice.
I'm on the Anthony Nolan register. Have been for about 5 years and one day may hear something if I'm a potential match for someone.
I was recently identified as a possible donor. I registered over 20 years ago, back when I was a student. I've had the blood tests and the results have indicated that I am compatible. The last I heard was back in February when I was told that the transplant centre had not issued any instructions and they would be in touch as and when. I don't know if they line up several potential donors or just the one!
BTW apparently if your weight is below 50 kg (not a problem I have) the stem cell method is not suitable and they have to take the marrow from the pelvic area!
It will be only one person Hells, but the donation is tightly coupled to their treatment. So their treatment maybe better or worse than planned.... . Your match is is usually someone with a common ancestor aparently.
Interesting!! If they're related to me they have my sympathies!!!
Also been on the Anthony Nolan register for the last 20 years, ever since my brother became ill(A-plastic anaemia) and one of the potential treatments at the time was a bone marrow transplant(fortunately he didnt need it in the end).
Have been called up twice as a potential match in the early years but nothing for over 15years now.
I had bone marrow removed from my pelvis to cultivate my own stem cells, they froze the area, took a hammer to the crown of my pelvis and sucked out some marrow, only thing I felt was a wierd feeling as they were sucking it out, it was literally nothing to be worried about at all
Im sure as a donor they would be nice to you
They knocked me out when they took the bone marrow from my pelvis. Super easy.
If you are black or Asian (or I think any ethnic minority) you should double definitely as the odds of a match for BME is massively lower. You should say yes anyway but we need more BME registered as it can be so tough to find a match for patients.
Received a letter today from Anthony Nolan Trust. Apparently the person I was matched with is not a suitable candidate for stem cell transplant!
Not sure what to make of it!! The letter says that the transplant centre have not indicated that the person has improved or deteriorated! 😕