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As the title! Anybody had one? Does it hurt? Mrs Jerseychaz is due one to try and get to the bottom of her ME/CFS/Chronic Lyme Disease symptoms and is worried, having read the internet about it. I tend to dismiss all fears and web wisdom so she won't believe me!
My wife had one a few months ago. They do realise it can be a little distressing for some people and the staff who did hers were amazing, letting her know what was happening and constantly talking to her to make sure she was ok.
My wife said some of it was fine, just a sensation, was nothing to be alarmed about. The test where they steadily increased the "shock" level was worse and she didn't like that but got through it fine.
They assess the results as they go along and don't do some tests if they find a certain one has gone ok - basically they only do the minimum they need to.
I took time off work to go with her which helped her a lot.
The staff did say people have different reactions to the test, a lot of people are fine with it even if they don't enjoy it (and why would you enjoy it?) but they did say a small minority really really found it distressing and couldn't complete the test.
What I said to my wife and she agreed is that if it helps reduce the problem she had then it was worth it, and it turned out not to be as bad as what we read on the internet before we went.
Thanks Rob. I'll relay that - she's a sensitive soul! We're in the process of eliminating possibles to try and get to the root cause of what is a debilitating and frustrating issue.
How's her Vit B12 level? Also Magnesium?
I had them done after a non-functioning arm due to a brachial plexus injury on a motorbike. I have no idea whether the set up of this NCS is the same as what is being proposed.
They were not pleasant and quite a bit of discomfort as I was asked to move, or try to move, the arm in certain directions with big needles stuck in me. Given it is the means to getting more certainty about things, that was the biggest help in tolerating it.
Unfortunately the doctor at the end was very matter of fact saying that I would get no movement back, which felt catastrophic at the time. Through steely determination and physio I got 95% movement back after a year.
Never have worked out whether that means that the tests themselves are not that reliable or sensitive to the placement of the needles. But if they come back OK then it hopefully rules out something as an underlying cause.